Brain disorder

[nix5]

Hi all just wondering if there is any1 else that has been affected by brain disorder called Pachygyria??

 

[richsadams]

Hi all just wondering if there is any1 else that has been affected by brain disorder called Pachygyria??

Welcome to the forum! There are a lot of great people here willing to lend a hand anytime. Often using the Advanced Search box (at the top of every page) will lead you to the answers you're looking for. If not, feel free to post a question in the appropriate area.

Please take a moment to view the information here to get the most out of your iPad as well as our forum:


Forum Rules - Please read
Hacking Rules - Please read
iPad for Beginners
Free iPad User Manuals
Download The Official iPad Forum App


BTW, I moved your post to the iPad Off Topic area where you’re likely to get a better response to your question.


Welcome again and enjoy!

 

[SweetPoison]

Hi all just wondering if there is any1 else that has been affected by brain disorder called Pachygyria??

This is a new one for me. How long have you been affected?

 

[nix5]

Hey it's my son that has it. It's a very rare disorder n a nitemare 2 find other people/family's who r dealing with it (

 

[SweetPoison]

Sorry to hear this. Certainly his doctor can provide support groups for affected families.

 

[SweetPoison]

pachygyria support group - Google Search

 

[nix5]

Thanx but sadly the doctors dnt no alot bout it either 1000 people worldwide approx. Thanx 4 link bn there done that n nt best 2 lk at all worse case scenarios which r horrific!!

 

[AdmiralAdama]

This forum is a good place to go when you need a diversion. Chances are you'll read something that makes you wonder, maybe
smile. One thing's for sure. Because you started this thread, more people know about you and your son. We will be sending
positive energy your way. So say we all.

AA

 

[Hayles66]

Hear, hear. Hope you find like minded people.